I know I shared this on both my FB and Instagram, but I thought I should also put it here.
Here is an update on Ben’s little deformed foot. Originally they thought it could have been that the umbilical cord had been wrapped around it and caused the foot to swell. However it stayed the same size.
At his first appt. They did an x-ray which showed that his two toes have bigger bones but our doctor couldn’t tell what was causing it and why his sole was so much bigger. Therefore she referred us to Seattle Children's Hospital to see an Orthopedic Specialist. They took a look at his x-ray and we found out from them that his foot was worse than what we thought.
Ben’s two toes and sole were as the doctor put it “Made wrong”. They instead of growing at a normal rate they are growing at 110%. So basically his sole and two toes will continue to grow faster and larger than the rest of his foot and body.
The doctor presented us with two options for fixing the issue. The first would be to go in and remove the extra tissue and the two toes. The tissue in his sole though would always keep growing back and at a faster rate, because unlike a tumor there is no defined start and end point to the affected tissue. This means multiple surgeries, and because the tissue is over his whole sole and near the normal toes it would more than likely kill the other toes, ending in amputation.
The second option is just to lead off with amputation of the foot up to the heel. This would happen around his first birthday so he could learn to walk with a prosthetic foot.
My heart sunk to find out that my little guy would end up either having to have countless surgeries and then deal with this his whole life or lose his foot. In the end though we have decided that amputation will in long run be better for him. He will grow up with it and learn to have a normal life with his prosthetic foot rather than having him go through surgeries that will more than likely end with the same result.
It is very hard for us finding this out and having to make a decision like this. We know that he will be okay and will be able to live a normal life, but it is still hard to take when your child has a problem like this, especially when it is such a rare thing. We are extremely grateful though that he didn’t have anything more serious going on and we know that God will be with us and will watch over him.