I am here with a full update on Benjamin's stay at the hospital and his recovery since then.
The morning of, he was unhappy about me waking him up at 4:30am. Of course he fell right to sleep as soon as he was in the car, but oh my goodness, he was the cutest thing when we got to the hospital. They took us back to the pre-op room and the slider was open, so he sat there smiling at every person who went past. This of course had everyone "Oooing" all over him, because he is the most adorable little man ever!
So many nurses and doctors came into introduce themselves to us and Ben. Before we were even aware of what was going on, the anesthesiologist team and a nurse came in to get Benjamin. They pulled out a phone with a little kid game on it and the nurse held out her hands to take him. He of course is very social happy kids he just went for it. As they left the room with our baby I turned into a mess. All of the scary what if's immediately go racing through my head as we were no longer in control of what was happening to him. Watching them carry him through the hall, and him looking back at us all confused was extremely difficult. I am so happy though that he left happy and without crying for us, that would have made it hundred times harder.
Waiting was torture, it felt like forever! We had a little pager that would go off when they had updates for us. We got our first one at 9 to inform us that surgery had officially begun at 8:40, which was about an hour after he left us. Around 12:45ish we got a page to meet with the Doctor, He informed us that the surgery went perfectly. Benjamin took to the epidural just fine, he had minimal bleeding and the doctor said he has a "robust heel", which I guess makes for a better anchor inside his prosthetic. Ben's doctor told us it would probably be an hour or so and we would get another page to let us know when he had woken up. Not 15min later the pager went off. We checked in with the nurse and she told us he had woken up and one of us could go back to see him.
This of course wasn't a decision I even let Josh weigh in on. lol I was going back to see my baby, the mom in me took over, I was going to go protect my little one.
The nurse walked me into a room full of kids who were recovering from surgery. At the foot of Benjamin's bed she asked if I recognized him. I didn't. My baby had so many wires coming off him and he looked so out of it. I'd never seen him look like that before. Suddenly my body started shaking and my eyes filled with tears. I was overcome with emotions of sadness, and relief, mostly relief, knowing that he had made it through the worst of it. The moment I got to the side of his bed he started to pull and reach for me. The nurse was great, he helped gather all Ben's wires and tubes up so I could hold him and give him a bottle of sugar water. Which he guzzled in no time! The nurse told me that he did great while the anesthesiologist were prepping him. Ben wasn't a fan of the gas mask though but as soon as he woke up they said he sat and played with it. After about 20 min we had one of the orthopedic doctors and Ben's new nurse come in to introduce themselves. Then the nurses moved all his wires and tubes around and started to move him to his room.
Josh was already in the room when we got there, we were in a shared room with a little newborn girl. Who by the way, slept all the time, except for at night and when Ben was trying to nap. ugh....
That day he spent most of the time in bed and a little while in my arms. Holding him was hard though with his wires and tubes, which included, a sensor on his big toe, three on his chest, a catheter and the epidural out of his back.
About 8 that night was a rough point. I was holding him, playing, getting him to smile and giggle, when all a sudden he turned grumpy, then 30 seconds latter he was screaming, arching his back and a heart rate that was sky high. The nurse came in and had to give him morphine, then after they had gotten a prescription the doctor gave him an epidural bolus. This helped him settle down but he still really wanted to be held, so I held him until he finally fell asleep about 9:30.
He woke up at 5:00 then 5:30 he had the same pain he had the night before. That was seriously the worst. My child is screaming in pain and there is nothing I could do, I couldn't even hold him properly because of the wires, tubes and cast. Around 10 that morning they paused his epidural to see how he handled without it. They gave him oxycodone and Tylenol, which he took to beautifully. After they pulled all his epidural and all the wires and tubes we were allowed to leave as soon as he peed.
During that wait time we had two nurses a physical therapist and the orthopedic doctor trying to figure out a car seat for us. Because of his cast angle he wouldn't fit in his own, so they have ones specially made for kids in casts. Yeah, no one could figure out one for him because of his odd angles. Benjamin was such a trooper though, I was pulling him in and out of the seat with every adjustment they made, he didn't like it, but he stayed very calm through the whole thing.
Finally after lots of phone calls they found out that Ben's cast counted as "body weight" so he could wear a harness. This harness is something else. I am not a fan. But it gets us from point A to B. His harness is very similar to one a skydiver would wear, we lay him on the back seat, then feed the seat belts through and tighten him in. One of the annoying things with it is, we can't have Claire's seat in there with him because it will bump him on the head, so if we want to go anywhere as a family we have to take separate cars. Which is not the end of the world. Just a little annoying.
Anyways! We were finally able to leave around 7pm on the 2nd to take our baby home. He was a little out of it because of his meds but he did amazing all night long. He since leaving the hospital he has not had any oxycodone, just Tylenol. which he hasn't had any of for 24 hours now.
Benjamin is now crawling with his cast and walking along the edges of the coffee tables and couches. He has been very clingy to me, even when others are around and wanting to give him attention. He goes and plays with Josh on the floor, but the instant I walk in he freaks out and climbs all over me. It is very annoying, but he is doing much better than I though he would be at this point, so I am okay with it.
I am very thankful to everyone for their prayers, kind words and thoughts. It has really made it so much easier knowing we weren't going through this alone. Josh and I are extremely grateful for our church and the meals they have provided along with ones from our friends. Also our families and for all their help too, they have really made things a lot smoother for us. We just love everyone so much for everything!